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Translational Medicine / 转化医学Rare Cancer Advocacy, Orphan Drug Policy

Rose Bhatt

MPH

🏢Rare Cancer Alliance🌐USA

Executive Director

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👥Biography 个人简介

Rose Bhatt leads a rare cancer advocacy organization that fights to accelerate research and treatment access for patients with cancers lacking standard-of-care options. Her policy work contributed to expansion of the Orphan Drug Act and the creation of FDA Breakthrough Therapy Designation pathways. She has advocated for inclusion of rare cancer patients in tumor agnostic biomarker-driven trials such as NCI-MATCH and ASCO TAPUR. Her coalition-building across rare disease communities has amplified patient voices in oncology drug development and regulatory decision-making.

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🧪Research Fields 研究领域

rare cancer research funding
orphan drug act advocacy
NCI MATCH trial access
tumor agnostic policy
rare cancer clinical trials

🎓Key Contributions 主要贡献

Representative Works 代表性著作

📄Data Sources 数据来源

Last updated: 2026-03-01 | All information from publicly available academic sources

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