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patient-advocacy / patient-advocacyPatient-Centered Care

Suleika Jaouad

苏莱卡·贾乌阿德

Patient Advocate

🏢The Isolation Journals / MDS Alliance(《隔离日志》/ 骨髓增生异常综合征联盟)🌐USA

Author, Advocate, and Creative Wellness Leader作家、倡导者及创意健康领袖

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Key Papers
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Awards
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Key Contributions

👥Biography 个人简介

Suleika Jaouad is a New York Times bestselling author and leukemia survivor diagnosed with MDS at age 22. Her Emmy Award-winning New York Times column 'Life, Interrupted' and memoir 'Between Two Kingdoms' brought global attention to the lived experience of young adult cancer patients, reshaping public discourse on illness and survivorship.

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🧪Research Fields 研究领域

Patient Advocacy患者权益倡导
MDS骨髓增生异常综合征
Bone Marrow Transplant骨髓移植
Cancer Survivorship癌症幸存者
Mental Health in Oncology肿瘤心理健康

🎓Key Contributions 主要贡献

Narrative Advocacy for Young Adult Cancer Patients

Through her column and memoir, Jaouad gave voice to the unique psychosocial and logistical challenges facing young adults with cancer, spurring institutional attention to this underserved population.

The Isolation Journals

Founded The Isolation Journals community wellness platform, providing free creative prompts and programming to people facing illness, isolation, and crisis, reaching over 200,000 participants worldwide.

MDS and Bone Marrow Transplant Awareness

Publicly documented two bone marrow transplants, dramatically increasing awareness of MDS, donor registry participation, and the long-term survivorship challenges of transplant recipients.

Representative Works 代表性著作

[1]

Between Two Kingdoms: A Memoir of a Life Interrupted

Random House (2021)

New York Times bestselling memoir detailing her journey through leukemia, bone marrow transplant, and a 100-day cross-country road trip to reconnect with life and community after illness.

[2]

Life, Interrupted (New York Times column)

The New York Times (2012)

Emmy Award-winning column chronicling her cancer diagnosis and treatment as a young adult, read by millions and recognized as a transformative work of illness narrative journalism.

🏆Awards & Recognition 奖项与荣誉

🏆Emmy Award for Outstanding New Approaches (New York Times Op-Docs, 2014)
🏆New York Times Bestseller — Between Two Kingdoms
🏆Glamour Women of the Year Award

📄Data Sources 数据来源

Last updated: 2026-01-15 | All information from publicly available academic sources

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