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patient-advocacy / patient-advocacyPatient-Centered Care

Maimah Karmo

玛依玛·卡尔莫

Patient Advocate

🏢Tigerlily Foundation(虎百合基金会)🌐USA

Founder and CEO创始人兼首席执行官

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Key Papers
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Awards
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Key Contributions

👥Biography 个人简介

Maimah Karmo is a breast cancer survivor and founder of the Tigerlily Foundation, dedicated to educating, empowering, and advocating for young women with breast cancer, with a particular focus on women of color and underserved communities. Diagnosed at age 32, she transformed her experience into a national movement for equity in breast cancer care.

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🧪Research Fields 研究领域

Patient Advocacy患者权益倡导
Breast Cancer乳腺癌
Young Women with Breast Cancer年轻女性乳腺癌
Health Equity健康公平
Multicultural Outreach多元文化推广

🎓Key Contributions 主要贡献

Tigerlily Foundation Programs for Young Women

Built a comprehensive suite of support programs—including LILY Pad peer mentorship, SEED financial assistance, and GROW health education—serving thousands of young breast cancer patients annually across the US.

Health Equity in Breast Cancer for Women of Color

Pioneered culturally competent outreach and education campaigns reaching Black, Latina, and other minority women with breast health information and navigation support, addressing systemic disparities in diagnosis and treatment.

Congressional and Policy Advocacy

Testified before Congress and engaged the White House on policies affecting young women with breast cancer, advocating for equitable access to fertility preservation, clinical trials, and financial assistance programs.

Representative Works 代表性著作

[1]

Fearless: Awakening to My Purpose (Memoir)

Tigerlily Foundation Press (2012)

Personal memoir and advocacy manifesto detailing Karmo's breast cancer diagnosis and recovery, used as an educational and inspirational tool in Tigerlily's community outreach programs.

[2]

LILY Pad Peer Mentorship Program

Tigerlily Foundation (2010)

National peer support program matching young breast cancer survivors as mentors to newly diagnosed patients, recognized as a model for psychosocial patient-centered care in young adult oncology.

🏆Awards & Recognition 奖项与荣誉

🏆White House Champion of Change Award
🏆Susan G. Komen Spirit of Courage Award
🏆American Cancer Society Excellence in Service Award

📄Data Sources 数据来源

Last updated: 2026-01-15 | All information from publicly available academic sources

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