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patient-advocacy / patient-advocacyPatient-Centered Care

Fran Visco

弗兰·维斯科

JD

🏢National Breast Cancer Coalition(美国国家乳腺癌联盟)🌐USA

Founder and President创始人兼主席

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Key Papers
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Awards
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Key Contributions

👥Biography 个人简介

Fran Visco, JD, is a breast cancer survivor and founder of the National Breast Cancer Coalition (NBCC), the largest breast cancer advocacy organization in the US. Since 1991, she has championed evidence-based advocacy, pushing Congress for increased research funding and patient involvement in clinical trial design and oversight.

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🧪Research Fields 研究领域

Patient Advocacy患者权益倡导
Breast Cancer Policy乳腺癌政策
Clinical Trials Access临床试验获取
Research Funding研究资助

🎓Key Contributions 主要贡献

National Breast Cancer Coalition Leadership

Founded and led NBCC since 1991, mobilizing thousands of advocates and securing billions in federal research funding through landmark legislative campaigns including the Breast Cancer Research Program within the DOD.

Clinical Trials Access and Patient Involvement

Pioneered the model of training breast cancer advocates to participate meaningfully in scientific peer review and clinical trial design, fundamentally changing the relationship between patients and researchers.

Deadline 2020 Campaign

Launched the Deadline 2020 initiative to end breast cancer by 2020, focusing resources on metastatic disease prevention and catalyzing international scientific collaboration around stopping metastasis.

Representative Works 代表性著作

[1]

Project LEAD (Leadership, Education and Advocacy Development)

NBCC Program (1995)

Flagship science training program equipping patient advocates with skills to participate in research review, influencing hundreds of grant panels and clinical trial protocols nationally.

[2]

Breast Cancer Research Program (BCRP) Advocacy

US Department of Defense (1992)

NBCC advocacy secured the creation of the DOD BCRP, which has distributed over $3 billion for breast cancer research since its establishment.

🏆Awards & Recognition 奖项与荣誉

🏆Presidential Citizens Medal (2001)
🏆Susan G. Komen Brinker Award for Scientific Distinction in Patient Advocacy
🏆American Cancer Society Medal of Honor

📄Data Sources 数据来源

Last updated: 2026-01-15 | All information from publicly available academic sources

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